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Other Documents of Interest
 
· Professional Roles in the Multidisciplinary Team in Genetics.
A Framework for Practice prepared by a Working Party of the Clinical Genetics Society and the Association of Genetic Nurses and Counsellors.
· Promoting Equity of Access to Genetic Healthcare - A Guide to the Development of Linguistically and Culturally Competent Communication Services
· Booklet by GIG (Genetic Interest Group): "Research and Rare Genetic Differences - A question and Answer booklet"
· Recommendations for Wilms Tumour Surveillance in children at increased risk (e.g. Beckwith-Weidemann) from the WT Surveillence Working Group
· National Genetics Reference Laboratory (Manchester) has commissioned a report of IT systems in English genetic centres.
Click here for report
· The NHS Haemoglobinopathy Screening Programme recently commissioned Cynthia Gill & Nicole Klynman to look at the Care Pathways for Antenatal and Neonatal Haemoglobinopathy Screening in London. Click here for report
· The Welcome trust has commissioned a report - Education and Training of Health Professionals in Genetics by Dr Hilary Burton (Public Health, Cambridge). The executive summary is available here, or for full report go to PHGU
· Read the results of the survey of BSHG members on Public Understanding by Dr Helen Middleton-Price.
· Full text of the Genetics White paper (Our Future, Our Inheritance) is available from Dept of Health.
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