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Joint Meeting
UK / Dutch Clinical Genetics
Societies
& Cancer Genetics Group
15th - 16th March 2012
Life Conference and Banqueting,
Centre for Life, Times Square,
Newcastle upon Tyne NE1 4EP
Registration now OPEN
There is a
dedicated website for booking
accommodation for the conference
Programme is now
available
Closing Date 24th February 2012
(23:59 GMT) |
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AGNC Spring
Meeting 2012, Cambridge,
Tuesday April 17th 2012
Please be advised that the
Closing Date for Call for
Papers has been extended to
5th
February 2012 (23:59)
CALL FOR PAPERS
Abstract submission for the
Association of Genetic
Nurses and Counsellors
Spring Meeting 2012 is still
open
Submission Form can be
downloaded from
www.agnc.org.uk/events/springconf.htm
All contributions for spoken
and poster presentations
should be submitted online
to Dina Kotecha at bshg@bshg.org.uk (up
to 250 words) using our Abstract
Submission Form
Closing Date for Receipt of
Abstracts:
5th February 2012 (23.59)
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New advances
prompt genetics guidance update
A new report from the Royal College
of Physicians (RCP), Royal College
of Pathologists and British Society
for Human Genetics exploring
benefits for diagnoses, risk
prediction and clinical management,
and accompanying ethical and legal
issues of managing information that
is relevant to both the individual
and their family.
Consent and confidentiality in
clinical genetic practice: Guidance
on genetic testing and sharing
genetic information
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Genetic Testing of
Children
Report of a working party
of the
British Society for Human Genetics
Guidelines
genetic
testing children |
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The British Society for Human
Genetics is grateful for the
opportunity to respond to the Public
consultation on the revision of
Directive 98/79/ec of the European
Parliament and of the Council of 27
October 1998 on the IVD directive
Revision of European IVD directive
response from the British Society
for Human Genetics
Response from the European Society
of Human Genetics
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Launch of HGC Principles for
direct genetic tests - 4 August 2010
The Human Genetics Commission, the
UK Government's advisory body on
developments in genetics and their
ethical, legal, social and economic
implications, has launched today a
'Common Framework of Principles' for
direct-to-consumer genetic testing
services. A copy of the Principles
can be downloaded
here.
These Principles, which are
applicable in different
jurisdictions, have been developed
in conjunction with representatives
from the international genetic
testing industry and represent a
high level of consensus about what
constitute good practice. They offer
a guide to consumers, as well as
service providers and regulators,
about the elements that should make
up a good quality direct genetic
testing service.
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BSHG response to "Gene Tests: the
new Russian roulette?" (Daily
Mail, Tuesday May 25 2010)
The British Society for Human
Genetics welcomes public discussion
of the issues raised by genetic
testing. Overall, this article
provides a balanced overview of both
the benefits of genetic testing, and
the difficult decisions sometimes
faced by families affected by
genetic conditions. However, the
BSHG is disappointed that a comment
from the society about the future
use of genetic testing in healthcare
- for example to predict response to
certain medicines - was cut short
and taken out of context. The
article further suggests that
genetic tests may one day be used to
routinely check embryos and
prospective parents for genetic
changes that cause disease. The BSHG
would like to clarify that it does
not share this view, and that the
decision to take a genetic test
should always remain with the
individuals and families concerned. |
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ELECTRONIC COMMUNICATION - No
more paper copies - ALL information
to members will now be ELECTRONIC.
This will greatly benefit everyone
- the Society from incurring large
printing and postage costs
- members will be able to access and
store the information more quickly
and efficiently
- helping the environment.
Please ensure that the
Administrative Office (bshg@bshg.org.uk)
has your up to date EMAIL address
BSHG response
to the
HGC consultation
on a framework of Principles for
Direct to
Consumer Genetic Testing |
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HGC
consultation
see details
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Genetics Committee
of National Institute for Health
Research
see details
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A joint response to the Ministry of
Justice consultation paper on the
use and sharing of personal
information in the public and
private sectors
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Response to the consultation by the
Association of British Insurers on
their
Code of Practice for Genetic Tests
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Response to the draft Guidelines on
Human Biobanks and Genetic Research
Databases
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House of Lords Science and
Technology Committee
Call for evidence: Genomic Medicine
A response from the British Society
for Human Genetics |
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Data Sharing Review-
A response by the BSHG and JCMG
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ITV1 programme - 'The killer
within' BSHG complaints
OFCOM
ITV1
OFCOM response to the British
Society for Human Genetics |
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ORPHANET is a database dedicated to
information on rare diseases and
orphan drugs. Access to this
database is free of charge.
Sign up here |
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New title published by the Royal
College of Physicians -
The Science of Morality |
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JCMG Guidance on The Human Tissue
Act-Amended version |
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Consent and confidentiality in
genetic practice - A report of the
joint committee on medical genetics
Report Contents |
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Promoting Equity of Access to
Genetic Healthcare-a report by
the Genetic Interest Group |
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Do Once and Share Clinical Genetics-
Final Report. |
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RCP seeking volunteers for
Invited Service Reviews team
members. |
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Book
Club |
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Scion Publishing - 20% discount
for BSHG members |
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Oxford
University press. 20% discount for BSHG members |
