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British Human
Genetics Conference 2010
Registration has now closed, If you
still wish to attend the conference
you may register on-site on the day
Please contact the Office in
Birmingham if you require further
details
British Human Genetics Conference
Programme 2010 -
click here |
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Launch of HGC Principles for
direct genetic tests - 4 August 2010
The Human Genetics Commission, the
UK Government's advisory body on
developments in genetics and their
ethical, legal, social and economic
implications, has launched today a
'Common Framework of Principles' for
direct-to-consumer genetic testing
services. A copy of the Principles
can be downloaded
here.
These Principles, which are
applicable in different
jurisdictions, have been developed
in conjunction with representatives
from the international genetic
testing industry and represent a
high level of consensus about what
constitute good practice. They offer
a guide to consumers, as well as
service providers and regulators,
about the elements that should make
up a good quality direct genetic
testing service.
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BSHG response to "Gene Tests: the
new Russian roulette?" (Daily
Mail, Tuesday May 25 2010)
The British Society for Human
Genetics welcomes public discussion
of the issues raised by genetic
testing. Overall, this article
provides a balanced overview of both
the benefits of genetic testing, and
the difficult decisions sometimes
faced by families affected by
genetic conditions. However, the
BSHG is disappointed that a comment
from the society about the future
use of genetic testing in healthcare
- for example to predict response to
certain medicines - was cut short
and taken out of context. The
article further suggests that
genetic tests may one day be used to
routinely check embryos and
prospective parents for genetic
changes that cause disease. The BSHG
would like to clarify that it does
not share this view, and that the
decision to take a genetic test
should always remain with the
individuals and families concerned. |
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ELECTRONIC COMMUNICATION - No
more paper copies - ALL information
to members will now be ELECTRONIC.
This will greatly benefit everyone
- the Society from incurring large
printing and postage costs
- members will be able to access and
store the information more quickly
and efficiently
- helping the environment.
Please ensure that the
Administrative Office (bshg@bshg.org.uk)
has your up to date EMAIL address
BSHG response
to the
HGC consultation
on a framework of Principles for
Direct to
Consumer Genetic Testing |
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HGC
consultation
see details
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Genetics Committee
of National Institute for Health
Research
see details
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A joint response to the Ministry of
Justice consultation paper on the
use and sharing of personal
information in the public and
private sectors
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Response to the consultation by the
Association of British Insurers on
their
Code of Practice for Genetic Tests
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Response to the draft Guidelines on
Human Biobanks and Genetic Research
Databases
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House of Lords Science and
Technology Committee
Call for evidence: Genomic Medicine
A response from the British Society
for Human Genetics |
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Data Sharing Review-
A response by the BSHG and JCMG
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ITV1 programme - 'The killer
within' BSHG complaints
OFCOM
ITV1
OFCOM response to the British
Society for Human Genetics |
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ORPHANET is a database dedicated to
information on rare diseases and
orphan drugs. Access to this
database is free of charge.
Sign up here |
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New title published by the Royal
College of Physicians -
The Science of Morality |
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JCMG Guidance on The Human Tissue
Act-Amended version |
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Consent and confidentiality in
genetic practice - A report of the
joint committee on medical genetics
Report Contents |
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Promoting Equity of Access to
Genetic Healthcare-a report by
the Genetic Interest Group |
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Do Once and Share Clinical Genetics-
Final Report. |
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RCP seeking volunteers for
Invited Service Reviews team
members. |
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Book
Club |
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Scion Publishing - 20% discount
for BSHG members |
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Oxford
University press. 20% discount for BSHG members |
