Updated Guidelines for the diagnosis and
management of progressive ataxias have recently
been produced by the charity Ataxia UK in
collaboration with neurologists, clinical
geneticists and other clinicians with expertise
in ataxia. Free printed copies are available
from Ataxia UK and for an online version go to
http://www.ataxia.org.uk/page.builder/clinical_guidelines.html
The Myotubular Trust, a new European research
fund was established in 2006, with the aim of
funding research specifically to find a
treatment or cure for Myotubular Myopathy.
Professor Victor Dubowitz has been appointed
Founding Patron and Professor Francesco Muntoni
as Advisor. The Trust have been extremely
successful in their campaign and have already
raised over £100,000 (150,000 Euros) and hope to
start inviting applications for research grants
sometime in 2007.
FIRST MYOTUBULAR TRUST CALL FOR PROJECTS
The Myotubular Trust is looking to fund projects
that will help find a cure and / or a treatment
for any of the three types of myotubular
myopathy (congenital X-linked recessive;
congenital autosomal recessive; autosomal
dominant), focusing on research that would not
generally be funded by public or industrial
funding sources. We will require completed
applications by 1700 hours Friday 19th December
2008. We anticipate making awards in April 2009.
This call will be open to European research
bodies only.
Applications may be made for project grants or a
Myotubular Trust fellowship (non-clinical). The
Trust may be willing to fund the continuation of
an existing research project (but not to fund a
project that is already being funded by another
body) – please use the project grant form. The
application forms will be posted on the website
http://www.myotubulartrust.com during the
first week of October. In the meantime, if you
would like an electronic form or if you have any
questions relating to this call for projects,
please email
[email protected].
Interested in benefiting from a Jeans for
Genes grant award?
Jeans for Genes is a UK-registered charity and
our mission is to raise money to provide care
and support for children and families living
with genetic disorders, and fund ongoing
research into the causes and cures for these
disorders.
This year Jeans for Genes is accepting
applications from UK charities for grants
ranging from £500 to £25,000. Successful
applicants will be charities that work with
children with genetic conditions and whose
projects will help extend the reach of Jeans for
Genes into the genetic disorder community.
Deadline for applications: 30th September
2008
For everything that you need to know:
http://www.jeansforgenes.com/about/grants
Tel- 0207 199 3300
|
